"Team Avery" is proud to announce the return of Dallas Cowboys Hall of Fame Running Back Tony Dorsett to Avery's Roar to the Shore Sunday, June 5th at the Westbrook Elk's Lodge 12:00‐3:00 pm
"Team Avery" & Re/Max Valley Shore Genovali Realty Hot Air Balloon Rides Sunday, June 5th Before Avery's Roar to the Shore at the Westbrook Elk's Lodge 9:00‐11:00 am $10.00 donation (Time & Weather permitting/First come first serve)
Purchase your tickets below to Avery's Roar to the Shore event and help raise awareness and research funds for an extremely rare genetic disorder CDKL5.
In 2008, Avery Rose was born a healthy baby girl. At 6 weeks, she started having uncontrollable seizures. At age 2, Avery was diagnosed with a very rare condition called CDKL5 and she is still the only child in Connecticut to have this condition. Less than 1200 children in the world have CDKL5. Avery does not walk, talk, or use her hands for any function. With the tremendous support from Bill's Seafood family and friends it is truly "Team Avery". In the past 6 years we have raised over $300,000 for CDKL5 research and a priceless amount of awareness for all our “Silent Angels”. Because of your support, we hope that someday, Avery and all her CDKL5 friends around the world will be cured.